Tuesday, April 2, 2013

Crystal Skin - A documentary based in Bogotá, Colombia that traces the lives of four individuals living with Epidermolysis Bullosa (EB)



Two JP-based independent filmmakers, Michaela O'Brien and Melissa Langer, will be holding a fundraiser to raise post-production funds for In Crystal Skin, a documentary based in Bogotá, Colombia that traces the lives of four individuals living with Epidermolysis Bullosa (EB), a rare disease that affects 1 in 50,000 people. They will be screening their trailer and displaying photography for sale. Join them for free food, drinks and raffle prizes from local JP stores! The event is on Thursday, April 18th from 7:30 - 11pm at the Aviary Gallery in JP. 


MORE ABOUT THE FILM: 
In Crystal Skin is a lyrical portrait of four individuals challenged by
Epidermolysis Bullosa (EB), a rare disease that affects 1 in 50,000 people. 
This documentary reveals the untold  story of a tireless global network of 
individuals, parents and doctors battling to find a cure. It follows two sisters 
with EB who live in a crowded orphanage in Bogotá, Colombia. As their story
unfolds, the film explores the private lives of two other individuals battling EB: 
a ten-year-old girl as she is shepherded across the threshold of a complicated 
adolescence by her devoted mother and a middle-aged messenger searching
for a companion in a bustling city.  

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